Concede your helplessness and you are no more helpless.You can continue to do what you want to do about this condition. You can continue to LIVE without this feeling of helplessness, once you concede.There is so much more in LIFE.So much.

Yes, it can be very difficult if not impossible to see through to life when in the forefront illness takes over our physical world, because one can't simply separate internal from external or mind from body. All I can say is that anger and negative thoughts will destroy the internal world as well, making it almost more painful than the external, creating two helpless situations when there is only one. Perspective is a powerful thing. If only we could accept the one, so as not to infect the other. I wish you all the best and the future might yet hold a cure in the physical sense, but forget those hopes and maybe you can find meaning in the present moment where regret, anger, and fear are not accessible. Hope is there and you are HERE. Try not to fight what you can't fight, but do what you can do now and find meaning somewhere here. Well, words are just words and I regret it's all I have to offer. One can empathize but can never understand until he's in the shoes of the other. Good luck to you Joan.

A sobering reality check for us less painfully challenged. Here I thought I was bad with a continually achy back, that sometimes goes out to the point where I can't stand up straight. As the saying goes, "I felt sorry for myself, not having any shoes, then I saw a man with no feet." Here's wishing you strength Joan in this cross you bear.