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Dystonia by Joan Serratelli
If anyone reading this
has a movement disorder;
If you are having spasms
anywhere on your body
If you are taking medication
and you have noticed changes
in your body
PLEASE take the time
to look up the medication’s
side effects-
IF you have been told
the word “psychogenic”
don’t buy that dianosis-
it’s NOT Stress- it is a physical disorder
No, you are NOT a “nut job”-
no-one fakes spasms
I’m handicapped, but my intelligence,
thank G-d was not affected
when my spasms started-
I know- I would not know
HOW to fake a spasm
I do not like pity
I was raised by parents
who were advised to raise
me as “normal” as they could
They got me help for my handicap
but it was done outside school
(except for speech therapy)
At the time, my parents tried
in vein to find me physical therapy
but while I had CP, it was, in essence,
minimal
so, my parents bought me toys that
challenged my co-ordination
When there is a will;
There is a way
Though I know
I was never normal
it did not stop me
In some cultures
I would have been killed
shortly after birth
with all the obstacles
in my way
I am still here
My parents were wonderful
they never gave up
I will never give up
either
I have 3 kids
6 grandkids
and hope
the future
will prove
better
than the past
I am not alone
01/03/2013
Author's Note: IF you, G-d forbid, see yourself in this piece and have gotten the "it's all in your head" speech, do yourself a favor and see a Movement disorder specialist....and contact me.
Posted on 01/03/2013 Copyright © 2026 Joan Serratelli
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