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Dystonia

by Joan Serratelli



If anyone reading this

has a movement disorder;

If you are having spasms

anywhere on your body

If you are taking medication

and you have noticed changes

in your body

PLEASE take the time

to look up the medication’s

side effects-

IF you have been told

the word “psychogenic”

don’t buy that dianosis-

it’s NOT Stress- it is a physical disorder

No, you are NOT a “nut job”-

no-one fakes spasms

I’m handicapped, but my intelligence,

thank G-d was not affected

when my spasms started-

I know- I would not know

HOW to fake a spasm

I do not like pity

I was raised by parents

who were advised to raise

me as “normal” as they could

They got me help for my handicap

but it was done outside school

(except for speech therapy)

At the time, my parents tried

in vein to find me physical therapy

but while I had CP, it was, in essence,

minimal

so, my parents bought me toys that

challenged my co-ordination

When there is a will;

There is a way

Though I know

I was never normal

it did not stop me

In some cultures

I would have been killed

shortly after birth

with all the obstacles

in my way

I am still here

My parents were wonderful

they never gave up

I will never give up

either

I have 3 kids

6 grandkids

and hope

the future

will prove

better

than the past

I am not alone

















01/03/2013

Author's Note: IF you, G-d forbid, see yourself in this piece and have gotten the "it's all in your head" speech, do yourself a favor and see a Movement disorder specialist....and contact me.

Posted on 01/03/2013
Copyright © 2026 Joan Serratelli

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